Poem for Pinkfong

I love pinkfong.

I know pinkfong for more than 3 years.

I am now dedicating this poem to you -

(the creators of pink fong).

Pinkfong is my pink fox friend,

I know pinkfong and he knows me.

Always lovely and happy!

He sings in many languages.

I often watch the English and Spanish songs.

Pinkfong is fun ;

but informative as well.

Not many shows are like pinkfong;

Colourful, bright and musically nice.

I might grow up and stop watching pinkfong

or may be not;

But I will always remember pinkfong!

Years may go by,

pinkfong will stay.

He will enrich and add colour to kids' childhoods.

There will be a child who loves reading,

Another who loves math,

Another who loves space,

Pinkfong has something to give them all.

Sometimes I keep watching the same songs over and over,

I find it soothing to my hypersensitive ear.

I have learnt a lot from Pinkfong.

Many different topics have been added.

I love it but since i am a big boy now and I want to keep

watching pinkfong ,

Will you add more new and advanced topics?

I would love to see Egypt based songs if possible.

Thank you for creating Pinkfong.

I am forever grateful to you for being a part of my lovely

childhood and my education.

SAI KISHORE

(12/12/2018)

A Letter To His Staff Coach

Hello Rosalind,

I am Sai. I am good. Hope you are well too.

I wanted to attend the evaluation this time and creep independently before you but unfortunately I won’t be coming this time. I will meet you and creep independently in the next evaluation.

Currently, I am enjoying my physical and intellectual program. It is so much fun. There is pain but

whenever I think about the faith you have on me I tell to myself “Do not fail Rosalind!”.

I believe in myself and my family. We will achieve great things together. I am able to read independently ,

write through FC and even host shows. I am grateful to you and Jagjit for giving me FC board.

Physically, I am now able to creep short distances on my own. I am hoping to creep independently the next time I meet you.

I thank you for taking the time to read my letter.

Sai Kishore.

Poem: Sorry

I may have been upset,

But what I did was wrong;

I may have been angry,

Still I did a wrong thing;

I may have been hurt,

Still not an excuse.

Instead of solving my small problem,

I inflated it into a big problem.

I could have handled it better,

But I made a mess.

Sai the super boy became Sai the stupid boy.

I apologise for my bad behaviour.

I am sorry mommy and daddy.

Please forgive me and love me always and forever.

- SAI KISHORE

(Nov 17,2018)

Poem: May there be a good life ahead!

I know that you have been suffering

physically, mentally and financially.

I know that you have been trying hard

to come out of this.

I know that you are working tirelessly

towards your goals.

I know that you are hoping

for a change.

I can see that the beautiful life you deserve is going to become a reality.

Your hard work will reap fruits very soon.

That day is near.

Very near.

You will live the life you dreamed of.

May you have the best of whatever life offers you.

- SAI KISHORE

(22/10/2018.)

Poem: I love my life

I have a dear mommy, daddy and brother.

I have a beautiful house where I can do my program.

I have a marvelous brain that is growing every day.

I eat healthy foods and drink clean water.

I am very strong and healthy.

I am having a wonderful family

They help me achieve my goals and dreams.

I am blessed with a beautiful life and I love it!

- SAI KISHORE

( YEAR 2018)

Poem : I love history

History is beautiful,

History is life of the past,

It is interesting and very captivating,

I can’t stop thinking about it.

It is like a black hole,

but of the good side.

Pulling me in deeper and deeper.

I tried resisting it

but I failed.

Joann Fletcher gave me an insight on Egypt.

I will show the world the beauty of history.

Many will love it,

but I will be a humble history man.

I will be happy.

I will love my life for I will be creating history.

I will be remembered as a great history man and writer.

I will make my parents proud.

- SAI KISHORE

( YEAR 2018)

Poem: Don’t lose hope

I was like you,

Hopelessly trying to make sense of my life.

Many days were an absolute misery.

I have cried myself to sleep because

I was in pain.

Pain was not just in the body.

It was in my brain.

I suffered to understand the reality.

I never got it right and

I kept on failing.

Failure is a bitter experience,

but it is a good teacher.

Failing to understand is not really a failure

failing to try is.

Don’t lose hope.

Help is around you.

Open your mind.

Let the light inside.

- SAI KISHORE

(YEAR 2018)

Poem : Brain is beautiful

I have a small brain,

I am brain injured,

I have a deep injury,

But nothing of that matters!

My brain is beautiful,

It can learn anything.

It is not a fixed machine,

But an ever changing one.

It is complex and there lies its beauty.

I have a marvelous brain.

I can learn many things and remember them

and use them when needed

I am proud of my small but efficient brain.

I can do math.

I can creep and crawl.

I can read and understand English, Tamil and Spanish.

I am growing my brain everyday.

I am a beautiful brain boy.

- SAI KISHORE 

(YEAR 2018)

Poem : Love is a gift

Love is a gift

Love is beautiful,

Love is caring,

Love is real,

It is a golden egg.

Many people want love.

But they do not give it.

Love is a nice feeling,

Makes me feel warm in the coldest times.

Love makes me smile,

It has made me work hard.

Love is tough,

but it is very forgiving.

Love is my strength,

it gives me power.

Love is sweet.

Love is great.

To every person it is so.

I am so loved,

To be loved is to be blessed.

Do I know that love is a gift?

Yes, I know.

How about you?

- SAI KISHORE

( YEAR 2018)

3 years to 4 years

Chanakya turns one !

 Happy Birthday Chanakya ! 

New born - 1 year old photo collection

New born

1 month old

2 months old

3 months old

4 months old

5 months old

6 months old

7 months old

8 months old

9 months old

10 months old

11 months old

1 year old !!!

Time flies, but memories last forever...

Sai Kishore is creeping with support now !

Sai Kishore is ready to creep...

That's what our IAHP advocate said to us on the last visit.

Eight months back, SK was able to crawl well and push himself up to the quad position and hold for 5 seconds at most.Later on, he was able to do it for a maximum of 15 seconds after which he will fall down and start crawling.

He was not able to move past this stage and was getting a bit frustrated.It was a tough period for us.He didn't want to crawl anymore. 

When we showed our advocate one such video where he holds the quad position, falls down and stays put there due to frustration, she said that he was ready to creep and that's why he didn't want to crawl. She advised us to give him some torso support to creep and it has worked. 

Now, he is happily creeping around the house ( of course, with support) and smiling at everyone with his eyes saying " Look, I am creeping now !". He wants to do it all day. 

Here is one such video where he creeps in cross pattern.

This is definitely a great moment for us.

There is still a long way to go but what is life if you don't celebrate the little things... For these little things add up to give great happiness one day... Every small achievement will soon be one amazing success. That's what we hope for and work for... 

2 years to 3 years

April 2017

We returned home on 31st of March 2017, after Sai's first clinical evaluation. We were exhausted from the travel and we took a week's break in order to arrange the required things to start his program

We were greatly motivated to start the program as soon as possible. I took some time to bond with Chanakya as I was away from him for 4 full days. Luckily, the milk that I had stored was more than enough for him. So, no formula was required, thank God!

SAI KISHORE

We decided to resume the program slowly as the break had been too long to start an intensive program immediately.

At 31.1 months, his neurological age is 18.52 months. When we evaluated him at home after the WTD course, he was 14.2 months old with neurological age being 5.62 months. From 5.62 months to 18.52 months in approx 17 months is a great achievement for SK considering the fact that I was not able to give him intense therapy for the past few months.

His development profile now looks like this:

( Better picture will be uploaded soon!)

APRIL-PROGRAM

Masking- 30x
Taste - 10x
Crawling- average 350 ft
Patterning- 3 times
Quad - 15x
Reading books - 10 to 15 mins
Tactile II - 10x
Tactile III - 10x
Choice board - 10x
Optimum auditory environment

Our primary focus for this month was nutrition. From May we will be showing flashcards. SK is looking forward to it!

This is how SK looks now...

SK with his dad

CHANAKYA

Chanakya's program is based on the ' how smart is your baby?' book.
I have listed the activities that he did in April and where he was at his profile due to all the stimulation.

(Age approximately 8-12 weeks)

• Visual
• Stage III ( initial ) - Outline bits with simple detail
• Stage III - Detailed black and white checkerboard with coloured silhouette pictures
• Auditory
• Stage III - Meaningful conversation
• Environmental sounds
• Tactile
• Stage I - Babinski reflex
• Stage III - Tickling & Massage
• Mobility
• Inclined Track - 10 x a day
• Flat track  
• Language
• Having a conversation
• Specific sounds in a poem
•  Manual
• Stage I - Grasp reflex and hanging
• Balance activities - Stage I

At the end of 12 weeks 

Chanakya's Developmental Profile @ 3 months

P- Perfect
F- Functional

Chanakya - Crawling in Inclined Track

Chanakya's first swim: click here

Chanakya' s first swim

Date: 22/04/2017
Age: 2.5 months

A few pictures that we took ...

and here is a video ...

Baby C seems to enjoy being in water...