Showing posts with label Therapy. Show all posts
Showing posts with label Therapy. Show all posts

Sai Kishore is creeping with support now !

Sai Kishore is ready to creep...

That's what our IAHP advocate said to us on the last visit.

Eight months back, SK was able to crawl well and push himself up to the quad position and hold for 5 seconds at most.Later on, he was able to do it for a maximum of 15 seconds after which he will fall down and start crawling.

He was not able to move past this stage and was getting a bit frustrated.It was a tough period for us.He didn't want to crawl anymore. 

When we showed our advocate one such video where he holds the quad position, falls down and stays put there due to frustration, she said that he was ready to creep and that's why he didn't want to crawl. She advised us to give him some torso support to creep and it has worked. 

Now, he is happily creeping around the house ( of course, with support) and smiling at everyone with his eyes saying " Look, I am creeping now !". He wants to do it all day. 

Here is one such video where he creeps in cross pattern.



This is definitely a great moment for us.

There is still a long way to go but what is life if you don't celebrate the little things... For these little things add up to give great happiness one day... Every small achievement will soon be one amazing success. That's what we hope for and work for... 

Clinical Evaluation Visit - Part 1

JANUARY 2017 

It was on January 11th, 2017 that I got an email from IAHP that, for the first time ever, a clinical evaluation visit was scheduled to happen in India. It was such a great surprise for us because we were wonndering how we could take SK to Philadelphia with so little finance in hand.

We registered for the evaluation visit as soon as we received the mail because we didn't want to miss such a wonderful opportunity.The Evaluation was to happen in the last week of March and that meant I would be less than 2 months postpartum when we attend the evaluation.I had to plan well before the visit on how to tackle any health issues that might arise during that period.

Our slot was confirmed and we were eagerly looking forward to that event. There were days when I would be so worried whether I could make it, health wise.I was wishing to have a normal delivery and for my recovery to be quicker so that I could attend the evaluation without much to worry about.

Arranging the finance was not an easy task.It was taking so much effort on our part and we were still looking for ways to pay the fee amount.

FEBRUARY 2017 - MARCH 2017

Welcome Chanakya !

Baby C was born on Feb 3rd,2017 after approximately 10 hours of labor. I got dehydrated when I was 8 cm dilated and I started to cramp during the pushing stage. I was getting tired with every push and the doctors had to deliver the baby using forceps for the safety of the baby as well as mine.

While I was being stitched, I realized how lucky I was to at least have a normal delivery under such a situation. Yes, it sucked that I had 30+ stitches, but we were safe and Baby C was healthy.

It took me a few days to even walk without trembling.Sitting was more painful than standing or walking.I had severe blood loss and my haemoglobin levels dipped to 6.6!I was not able to regulate my body temperature and I constantly felt dizzy. The doctors suggested blood infusion in order to up the levels of hemoglobin. After a session of blood infusion, my hemoglobin was 8.8. At this point, I was allowed to go home with a prescription of iron supplements.

There were many other ailments of which I am not going to write here but it was a really tough time. It took me more than 20 days just to sit and more than 40 days to sit comfortably. I used to worry whether I would be able to travel and attend the evaluation.It was only with the help and support of my husband and our family that I was able to recover quickly than expected.

A million thanks to my husband, without whose support and encouragement, I would still have been lying on the bed saying 'I can't'.

Even as I am writing this, I haven't healed completely; but, I know that healing takes time and that I would be totally fine in a few more weeks.

Planning for the visit

We planned to leave Chanakya with my mom so that we could attend the evaluation with complete focus on SK. I was exclusively breastfeeding baby C and I didn't want to him to be formula fed while I was away. So, I calculated the amount of milk that he would need when I wasn't around and I started pumping a few days before to build up a stash.

Other than that, I had to review all the old notes and write down the details which were required.It was a daunting task as I had 5 big notebooks that contained information about his daily program.

The Evaluation Visit

Days flew by and it was time to leave for the evaluation.So far, everything went as planned and I had 3.5 litres of milk in the freezer on the day I was leaving to New Delhi.It was not easy on my mind to leave a 6 weeks old baby at home but the fact that baby C was still getting my milk gave me some peace.

In order to maintain the supply while away from the baby, I had to exclusively pump every 2-3 hours. I had to wash all the equipment, sterilize it and safely store the expressed milk after every pumping session. It was tiring but well worth the effort because I bought back home more than 2 litres of milk.

Even after so much planning I had to face a few issues with engorgement which fortunately subsided after a few pumping sessions. Luckily, I did not get any plugged ducts or mastitis in that period.



SK with his paternal grandma at the airport


I was also worried whether SK would feel groggy or disturbed after travelling in the air. I was comforted by the fact that he managed the travel so well.Throughout the visit, SK was wonderfully co-operative and thus the evaluation went smoothly.

PART 2 - click here

8 major roadblocks to success in Doman therapy and how to avoid them

There aren’t any sure-fire ways to make a therapy work the way we want it to. Still, there are a few things we can avoid doing, in order to increase the probability of success. As a fellow parent who follows Doman for her son, I wish to caution you about the mistakes that you are most likely to commit when you follow this mode of therapy.

This post is for all parents who have started (or already follow) IAHP's therapy for their kids. Following IAHP and sticking to the therapy with consistency is really a great task. In this tough journey, every parent is presented with various degrees of obstacles. Some issues are really common and easily solvable. Let us look at a few examples.

  • Certain concepts are totally new for the parents and it takes some extra effort on their part to completely understand the concept and implement it. For instance, consider patterning, masking and dot cards method for teaching math. These do not conform to the usual methods of teaching/ therapy.
  • A few of the ideas are revolutionary and even disturbing for a few parents. For instance, masking, vertical hanging, acceleration, etc. I even heard a parent once say that acceleration can cause brain damage or even result in shaken baby syndrome. Of course, that is not true. Still, it is totally understandable that she doesn't agree with a few of the suggested activities.
  • Most of the family doctors do not agree with certain activities proposed by IAHP which adds to the stress of the parents. There was one parent who said she totally believed in masking but her doctor does not approve of it. She was worried that she will never be able to do masking for her child. 
  • Family members may not be supportive of the therapy and keep criticizing the parents for treating their child this way. The grandmother may not be okay with the dietary restrictions of the kid, the grandfather might lose temper whenever the kid cries during patterning and so many such examples can be cited for this issue. Most of the Indian parents following IAHP and living together as a big family can relate to this.

Moving on to the bigger issues, let's talk about the barriers that do not involve anyone but you. These roadblocks can be totally dealt with, by your own power,but only you can solve them.

Minor issues like the ones stated above can be easily dealt with because they are visible and we can deal with them on face. We know what we are dealing with and we know how to solve them. If your doctor does not feel okay with masking, you can find another doctor who is willing to help you. If the kid's grandmother is not okay with the diet you can either convince her or ask her to stay out of it. There are easy solutions for these issues, but what about the barriers that stay hidden and hinder your progress? Those are the roadblocks that I am going to talk about now.


8 major roadblocks to success in Doman therapy




1. Being unclear about the concept before starting the therapy:

Without a complete understanding of the basics of the Doman method, you will never see progress. Take your time to fully learn the fundamentals and then begin the therapy. Only when you know what you are doing, you will know what to expect as an outcome. If that’s not the case, you will end up frustrated.

Luckily, we never fell into this trap but I've seen lots of parents do this when they start the therapy. They are so desperate for results that they do not want to waste any more time by delaying the therapy. That’s when they commit this mistake of jumping into the therapy without a complete understanding of it.

For instance, let's consider masking. Your child breathes into a mask for approximately 60 seconds and in that period he breathes in his own carbon dioxide and oxygen. This carbon dioxide present in the mask and inhaled by the kid helps dilate the vessels that carry oxygen to the brain thus resulting in a rich supply of oxygen to the brain in a short span of time. Masking should be done in intervals of no less than 7 minutes. There are many other stipulations that needs to be followed regarding masking.

If you do not take the time to read through the procedure and understand the logic behind masking, you might be inclined to do 2 sessions of masking within a 7-minute interval just in order to complete some 'n' number of sessions in a day. That is of course not good for your child.

So, always take your time to understand the concept completely before implementing it.

2. Doing something you do not completely agree with:

When you do not feel comfortable with what you are doing, you are better off not doing it. Simply, do those activities that you are totally okay with and skip those which you do not agree with.

For instance, let's say you are afraid of hanging your baby upside down for vertical rocking. Even after understanding that it poses no risk, you still have some fear in performing the activity.

Whenever you hang your baby upside down with that fear instilled in your mind, your baby will start crying or feel uncomfortable. It is because the kid senses your fear and thinks he/she is in danger. The whole activity does not yield any results because the goal of the activity is to be fun and effective both of which are not met in this case.

So, it is always better to do something with complete agreement or not do it at all.

     3. Implementing changes suddenly and simultaneously:

When you make radical changes to your home, be it in nutrition or organization or anything else, the household suffers. This leads you to revert back all changes, which means zero improvement. Make changes 1- step at a time. That gives enough time for your kid as well as the other family members to adjust with the changes.

For instance, you have decided to make all nutritional changes at the same time. You remove sugar, salt and even change your cooking oil, all at once. Imagine the taste of the food now! It is going to be bland.

We are all accustomed to dishes made with regular ingredients and all replacements are new to us. Whenever something is removed or replaced, it shows clearly in the taste and even appearance at times, which means we straightaway dislike the food. This will lead to disappointment rather than a welcome change.

Instead, if you start with removing sugar and then follow it with removal of salt and then replace the cooking oil, all with enough intervals for your family to adjust without their notice, you might find that, at one point, no one realizes that you have made these changes. Yes, it might take even a period of 2 to 3 months. Still, it is a thousand times better to slowly make a change and succeed rather than to quickly make a change and fail.

Change things 1-step at a time. A small change is always better than no change. A small change that will lead to success is always better than a big change that will anyway revert back.

    4. Devising a plan that is unrealistic:

A definite way to ruin your motivation is to create a plan that is way too hard to execute on a daily basis. Analyse your kid’s routine and create an achievable daily plan.

Once, I formulated a jam-packed routine for my son. It looked so good on the paper that I assumed it would be a great hit. Guess what happened?

I was not able to complete even half of what I had planned and I felt so incompetent at the end of the day. After a few days of following that plan, I realized that the problem was not because I was incompetent or that my kid wasn't co-operative; it was the plan that was unrealistic.

In this process of learning, I have lost a few days of time, precious time, that could have been used well only if I had devised an achievable plan. What I have learnt from my mistake is that, it is better to create an achievable plan and consistently complete it rather than creating an extremely hard plan and failing at it.

    5.  Rushing in to complete daily goals:

This is an extension of the previous statement. Sometimes we set a plan that is not achievable at the recommended pace. So, we rush in through the activities without giving enough intervals.

This means we have done something just in order meet our goals instead of making it joyous and effective for the kid. This is the real failure.

Instead, have a plan and try to complete it by implementing the therapy only at times when the kid is alert, active and happy. This makes sure that the stimulation (however little it might be!) you have given to your kid has been effectively given. Quality over quantity!

    6.  Comparing your kid’s progress: 

     This is the best thing to do if you want to give up on the therapy and end up feeling jealous and drained. Even when two kids have the same diagnosis, their progress need not be the same. Just because the other kid has started crawling, your kid doesn’t need to.

On the other hand, there are people who feel their kid is doing better than the other one. That’s a harmful thought too. It gives you a false sense of achievement and halts progress.

‘No comparison’ is the best way to see quick progress.

    7.  Comparing yourself with other parents: 

      Most of us have done that and still do it from time to time. Comparison in a good sense is motivating but there is only a fine line between healthy and unhealthy comparison.

Whenever I read some success story I feel happy for the kid and his/her parents. I feel a sense of motivation and encouragement. Thoughts up to this level are healthy.

But what happens if I move one step further and think the kid’s parents have given 10 hours of therapy for their kid every single day and that I must do the same or else my kid will not overcome his injuries. That’s where the problem begins. I will become frustrated that I am not competent enough and will start getting stressed out. That will reflect itself in the therapy and will that do any good to my son? No.

Just because someone else did it, it doesn’t mean you have to do the exact same thing. Every family has its own challenges and you never know what sacrifices they had made to achieve their goals. You never know what good influence they’ve had in their life to achieve what they had wanted. So, whenever you come across a success story, feel motivated but never feel compelled to copy what they did.

On the other extreme, looking down on other parents because they are not able to give a program as effectively as you (or so you think) is also detrimental. Do not ever do that. Not even once. You never know under what situation the family is following the therapy. At least, they are doing something for their kid.

Look up to other people for inspiration. Never compare yourself with them. That’s easier said than done. Still, it is an important skill to master.


    8.  Saving money by skimping on the essentials: 
     
There are times when the upfront expense is too high, so we decide to skimp. But note that they are the essentials. If you skimp on them and settle for 2nd- quality products, will you get a 1st-rated result?

Early on in our therapy journey we decided not to invest money in buying flashcards and instead we showed flashcards in using our computer. My son looked at the screen intently and so we thought it was working.

Only after 8 whole months we realized what a bad idea it was because he wasn’t able to recognize most of the things which we had showed him. We immediately purchased sheets of paper, cut them to size and started the reading program in the conventional way.

Within 2-3 months, we saw visible results and now my son can recognize words from 3 languages and he can do basic math. Isn’t that a good payoff for the money that we invested in buying cards?

Even though the expense is high, the payoff is high too. So never skimp on the essentials.


I am no expert on Doman and I don’t claim to be. This post is purely based on my experience following IAHP’s program for my son. 

Thank you for reading! Do you have anything that can be added to this list? Please leave it in the comments section below.

Have you been through one of these situations? I would love to hear how you managed to overcome the barrier.

Liked what you read? Share it with someone who might like it too...

The WTD course is happening!!! & other updates...

Yay! The WTD course is happening in India on October 18 , 2015 and we are eagerly looking forward to attend the course.

Krishna Jayanthi - Our little Krishna!



INCLINED CRAWLING TRACK:

He has started moving forward in the track and that is definitely a great news.
I will upload step by step videos after he starts cross crawling.

SWIMMING:

What if all the doors are closed; we have found a window.

We have bought an intex easy set up swimming pool to teach him to swim. So far things have been going really well and he loves spending time in water. Swimming has definitely helped his gross motor skills as well as his muscle tone.

Things are happening... We hope to see a positive change in Sai Kishore very soon.

A tiny light of hope

For the past 3 months things were not happening as expected.

We so badly wanted to attend the 'WTD' course in June but it got postponed to October. We were given a choice to attend it in Singapore but I did not get my passport at the right time , so we couldn't go to Singapore either.

We tried a lot but we couldn't arrange enough funds to attend the course in Philadelphia. So the chance of attending the course this month at Philadelphia is out of question. This leaves us with no choice except to wait until October to attend the course in India; and till this date we are not sure whether the course is happening this time at least.

Anyone who has read the WTD book will know that 0-36 months is the most important period for brain development and delaying therapy is bad for the brain injured child. Time is precious and must be used as effectively as possible in order to stimulate the brain of the kid.

Sai Kishore is still functional in the stage of crawling( Stage 2) & prehensile grasp( Stage 3). It seems like he is stuck and not able to complete those stages. He has been there for the past 3 months and we strongly feel that ' patterning' is the key to unlock the skill of crawling. Patterning is like a surgery , says Glenn Doman, and that it must not be given without proper training, which means we have to wait.

I had a few health issues due to which I had to pause his Flash card program. SK was not gaining weight at the expected rate in spite of feeding him a diverse range of healthy foods. He got sick for the first time in his life and he was totally down for a few days.

We wanted to teach him swimming in order to improve his gross motor skills as well as to help him with his muscle tone. After a long search we found that there are no infant swimming classes in our city. When we approached a few swimming camps whether they would accept our child, they refused. We were asked to come when SK turns 3 years old.

There was a period where he was seizure free , but the last three months he had more than 10 such occasions and he had around 3 brief episodes on his birthday.

We came to know that Frankincense will help him with his seizures and improve the activity of his brain. So we searched all over the city to get this essential oil and there was not even a single shop that had this oil.

We wanted to meet a pediatric neurologist but couldn't meet one due to financial constraints. Every single month we strive hard to save some money for the appointment and we hope we will be able to meet the doctor by this month.

Nothing was happening. Whatever we tried , it did not work.

Suddenly, things have started to change. Good things are coming and I can see a tiny light of hope. All the efforts that we had put in the past 3 months are starting to show results. People are coming forward to help and support us. It is not possible to mention everyone's name in a single post so we are planning to dedicate a CREDITS tab in the tab section of the blog to thank every single person for whatever help they have done.

We have started to give him intense therapy again. We strongly believe that we would see great improvements and we will definitely update the results soon.

Current goal: Teaching Sai Kishore to sit independently


I am an INTP. For those of you who do not know what it means you can refer to the picture below for an explanation.


MBTI personality types
16 personality types - MBTI


Being an INTP is tough. Only 3% of the whole world's population is INTP and female INTPs are even rarer. This makes it tough for me to relate with people around me. 

There are lots of advantages being an Introverted intuitive perceiving thinker. For example, INTPs are strong in logic, quick learners, idea generators etc. 

Coming to the drawbacks, INTPs are very curious- curious to the point that they keep on learning new things and forget to perfect what they have learnt. When in one angle it is good not to keep doing the same thing over and over, this constant jumping around results in less productivity.

I have been trying a lot not to do this jumping around when it comes to SK. Most of the times, I start with listing out what I have to do. Then I try to get as much information as possible regarding the to-do list. When scouring for information I find something new and start searching about that and completely forget what I had intended to do. 

In that process, I will have surely learnt something new; but what about my to-do list? I am in such a position where I do not have time to build my knowledge. I have to concentrate more on my to-do list and try to accomplish them step-by-step, one-by-one.

That's why I decided to make a step by step action plan for my to-do list.

So, here comes the first goal... Making SK sit independently.

Step 1: Making him push up on his arms. 

Step 2: Strengthening his core.

Step 3: Getting him to sit when propped 

Step 4: Muscle memory technique to get him to sit up on his own.


I have not set any deadline for this because I do not want to rush my baby to make milestones happen.I just want to help him in the process. 

I had enrolled in the WTD course provided by IAHP that was to happen on June 28th and unfortunately it got postponed to October. I am waiting to attend the course; meanwhile I just cannot keep my baby idle. He demands us to keep him entertained. So , I decided to take things into my hands. I will keep doing things in my way until I attend the course and get an action plan to work on. 

The above 4-step technique is my husband's idea and yes , he is an INTP too. 

Do you know what personality type you are?  If not you could find out yours here: http://www.16personalities.com/free-personality-test

There are many other websites out there that provide the same test. Feel free to cross check your results with a few more websites before coming to a conclusion about your MBTI personality.

How I started teaching my baby using flash cards...

How I found out about Glenn Doman and his method of teaching:

I stumbled upon brillkids.com when I was randomly surfing the internet about brain development in babies. After reading through all the information I felt a little overwhelmed. For some unknown reason I felt compelled to try it out with my baby. The methods listed in the website were Glenn Doman's method and Shichida's method.I went with the Doman method.

Why I chose Glenn Doman's method:

1. Flexibility - you do not need to start from the first if you have missed a few days of the program.
2. Fun - The method promised fun for both the parent and the child.

Flash card method: 

Before jumping into the teaching stuff , I wanted to check whether he liked to look at flash cards. So, I made a trial set of 3 cards ,in big red font on a white background and flashed it quickly in front of him. He looked at the cards intently and smiled. I thought to myself "Oh well! It works. Or may be it doesn't. I will need to make more cards in order to know whether this program works."

I have been using Glenn Doman's method for the past 6 months to teach my son words and numbers. 
Whenever I show him the cards he smiles broadly which encourages me to move forward with this method. The only drawback in this method is that the method is against testing babies since testing kills fun. Glenn Doman says "Never test your baby". We just have to assume that he would have learnt the words or numbers or whatever that is shown in the cards. 

So far, I've showed him a lot of English words, dot cards for numbers and pictures( encyclopedic knowledge program). Making the cards is time consuming and requires a lot of effort from the side of the parents. 


flash card- sample 1
Flash card- sample 1

Dot cards- for math
Flash card- couplets- sample


Does it work? 

It is too early for me to comment about the results. I do not know whether the method works. Moreover, I do not care whether it works; as long as he smiles whenever I show him flash cards I will keep doing it. 

I hope that when he starts to speak I will come to know whether the program has worked or not.

Opinions:

'Teaching young babies'

Some people are totally for it and some are totally against it.

There are researches that support early learning and claim that they work; and of course there are researches which claim that these methods are a waste of time. You can see a lot of YouTube videos where kids less than 3 years old are reading books and identifying pictures. On the other hand there are a lot of newspaper articles which say these methods don't work. 

You need to decide for yourself whether this is the kind of method you want to use to teach your baby. Trust your parental instinct - because a parent never does the wrong thing for his/her child.

Do you want to follow this method of teaching with your kid?


The founders of this method claim that this works well if you start early.For more information you can visit the iahp.org or read the how to teach your baby to read book.

I have uploaded the flash cards that I had made for Sai in the free materials section. Instead of trying to make everything on your own, just download the ready made files with a single click and save your precious time.

You can also visit domanmom.com & classicalmommy.com for many more free materials. 

The only suggestion I can give is - Do not concentrate on the results. The moment you start concentrating on results , the fun part will vanish.

What do you think about using flash cards to teach babies?

*Update- 1/03/16* The flashcards do work. Though he is not verbal yet, he chooses the right word when offered options and he can even do math( dot cards). I would definitely recommend this method for teaching young kids.

6 months - 9 months - a 3.5 min read

6 - 7 months :

  • Said 'baa' for the first time
  • Started playing with his pacifier
  • Started sitting for 45-50 seconds when placed in the sitting position

The shivering that occurred when he was in his 5th month repeated itself. This time the episode lasted for 5 minutes. The moment the shivering ended he looked comfortable as if nothing had happened.

Those shivers resembled 'shudder attacks' which are neither common nor uncommon in infants below 1 year. 

A few times he twisted and turned himself as if he was cramping due to dehydration. This was different from those shivers and was same only in the fact that he was still fully conscious and responding.

During this period he had nearly 10 attacks of both types together. Those attacks were only a minute or so in length. It looked as if he had no control over his body when the attack occurred.

7 - 8 months :

The shudder attacks were continuing. When we asked his pediatrician about those attacks he said that they were not seizures and that we needed to consult a neurologist to know more.

Half way through this period the shudder attacks completely stopped and instead , all of a sudden, one day he started to bob his head. The head bobbing went on for a week and stopped abruptly.

It was this period that we started to question our beliefs. Was our baby boy really free of medical issues? He started to show delay in achieving his milestones. The boy who was achieving all the required milestones way ahead of his peers was starting to lag.

I had my own theories for what was wrong with him. I strongly felt that we could almost always tell what problem someone has with their brain by observing what he/she is not able to do and we can correct it to some extent by proper stimulation. Say for example, if someone has a problem with posture and balance and is unable to co ordinate his movements , it is highly likely that his cerebellum is damaged. So, if we try to stimulate his cerebellum, his posture and balance might improve.

I found that Glenn Doman , whose method of teaching I was following for Sai , had worked with a lot of brain-injured children and all his learning methods were a product of the research done with brain-injured children. I contacted the IAHP( http://www.iahp.org/ )and they were polite enough to answer my questions. Finally, they suggested that I read the " What to do about your brain-injured kid" book by Glenn Doman for a complete understanding.

The book was an eye-opener and it cleared most of my doubts. The main reason I liked the book and believed in it is that the theory I had and the idea of the book coincided. For more on my views regarding the book and therapy click here

We bought the ' Fit baby, smart baby, your baby' book, also by Glenn Doman and started giving him the exercises mentioned in the book.  Within 2 weeks of starting the program we were able to see so much changes in him both physically and skill wise. 

Seeing significant improvements after implementing the exercises, we bought the ' How smart is your baby book?' in order to evaluate him as per the developmental profile designed by Glenn Doman. We found that our baby was lacking skills in the motor and manual areas. In other areas he was perfectly on time with his peers. 

8 - 9 months :

All the shudder attacks & head bobbing were gone for good. 

By the end of 9 months,
  1. He was still not able to sit without support
  2. He was not able to crawl in cross pattern
  3. His left hand was not good enough with grasping objects.
  4. He was not able to point at objects nor was he able to look at an object that was being pointed at.
  5. He didn't take mini push ups.
Even though he met a lot of little milestones , the list of milestones that he did not meet was becoming longer . He had developmental delay. We had to accept the fact that he needed special care and attention.